From IEPs to Denials: What No One Tells You About the Autism Paper Trail
Before We get into it…
April is Autism Awareness Month—but for so many of us, this isn’t a cause we wear on a T-shirt. It’s our everyday reality.
As a mama to an autistic child, I’ve lived the late-night Googling, the IEP-induced headaches, and the “why didn’t anyone tell me this?!” moments. Balancing school systems and insurance? That’s a whole job—on top of the one you already have.
So this month, I’m not here to throw buzzwords at you. I’m here to share what I wish someone handed me when I was just trying to keep up: real talk, useful info, and permission to exhale.
If you’re parenting, caregiving, or just trying to figure this all out—I see you.
Let’s untangle the chaos, together.

If you’re raising a neurodivergent child or supporting an autistic loved one, you already know: insurance is confusing, and school systems are a full-time job with no paycheck. Put them together? Oh, now we’re doing boss-level Tetris—with paperwork, acronyms, and decisions no one warned us about.
This month on Cover My Assets, we’re untangling the mess where education meets insurance. Because while you’re out here fighting for therapy coverage, you're also juggling IEPs like a ninja on three hours of sleep and caffeine.
Let’s get you back in the driver’s seat—with receipts, real talk, and a few gems they don’t put in the handbook.
Here’s how to regain your power:
What Your Insurance Should Cover (But Might Not Be)
- Occupational therapy, speech therapy, ABA (Applied Behavior Analysis)—but watch out for yearly limits, age caps, and that “sorry, out-of-network” mess.
- Co-pay assistance programs exist. No, really. But they’re not going to text you—you gotta go looking.
- Parental support + respite care—these may be buried under mental health riders or listed under a different name. Ask. Twice.
💡 Pro tip: Screenshot or save every approval and denial. Yes, even that one. It might feel extra now, but when it’s time to appeal? You’ll be glad you did.
What the School System Handles (Spoiler: It’s Not Everything)
- Schools handle IEPs, but they legally can’t diagnose autism—they can only respond to it.
- If your child’s getting services, they’re based on educational need, not overall development. That nuance matters.
- If the school says no to something critical? You have the right to file a formal request for an independent evaluation—and bring an advocate with you (a friend, a partner, or yes, your insurance agent. We roll deep).
How to Advocate Like a Boss Without Losing Your Mind
- Don’t go alone. Bring someone who has your back to IEP meetings. Witnesses matter. Support matters more.
- Create a shared doc. Track goals, services, denials, and “wait, what?” moments. Google Sheets > scattered Post-its.
- Know your rights. FAPE (Free and Appropriate Public Education) isn’t just a buzzword—it’s the law.
Top 5 Things That Should Be Covered But Aren’t (Yet)
- Mental health support for parents and caregivers
- Communication devices for non-verbal kids
- In-home sensory equipment
- Gas or travel reimbursement for therapy
- Advocacy coaching (because not everyone has the bandwidth to be both mom and legal counsel)
You don’t need to earn a PhD in "fighting systems." You deserve support that works for you, not against you. And if we can make insurance one less thing to stress about, that’s a win in our book.
Reply and tell us: What’s been your biggest win (or WTF moment) navigating both systems?


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